I am just so stressed out, just common words often said or heard on a daily basis. The world is a bit of a cruel place in that regards with its hustle and bustle it can keep even the best a little stressed out at times. So when you add Mitochondrial disease into this mix your added with a new set of hurtles to jump over. You want to talk about being stressed out to the max but wait here’s more. Stress is the one component that Mito patients should not have because it can factor into more suffering.
In a section one the website of United Mitochondrial disease foundation (UMDF) Treatments & Therapies. it states this
Avoidance of Physiologic Stress
Physiologic stress is triggered by external factors that may result in worsening the metabolic situation, which may result in temporary or permanent worsening of the condition. It is impossible to avoid all physiologic stressful conditions, so one should not attempt to do so. However, recognizing what may be stressful for patients allows one to adjust the lifestyle. Many patients and their parents have already identified these stresses, despite not knowing why the stresses were important, and avoid them.
Cold Stress is extremely important. Thermal regulation (temperature control) is not always normal in people with mitochondrial diseases and exposure to cold can result in severe heat loss and trigger an energy crisis. When going out into the cold, all exposed body parts should be covered, and exposure to extreme cold should be avoided for anything more than a short period. Over bundling can be a problem too (see below).
Heat Stress can be a problem in some people. This is especially true of those with an inability to sweat normally. Heat exhaustion and heat stroke may occur on hot days. It is typical for parents to describe that their child seems to “wilt” in situations like hot classrooms or direct sunlight, whereas the other children function normally. Light clothing is important. Patients should avoid direct sunlight on hot days and stay indoors if it is too warm outside. An air-conditioned environment may be needed.
So what is to most just the way it is (stress) to us is actually harmful causing more symptoms. They say stress can cause physical problems in a persons life and this is true we know it all to well. That coupled with what we have to go through since this illness is invisible to the naked eye. How many times have you heard but you looks good after talking about your disease. I can only say God bless the ignorance because they know not what they do. It does make it worse harder on us when treated this way.
I wish there was a cure or remedy here but the truth is there isn’t but maybe the just know it ourselves can take a little of the sting out. We can not walk around in glass bubbles in avoidance of stress but maybe if we just think about it slightly from the angle of its causes we can recognize it and thus avoid it ourselves.